The Congenital Anomaly Register and Information Service (CARIS) was established in 1998 as a register of congenital anomalies in Wales, and has always included some rare diseases of genetic/hereditary origin. It sits within the Health Intelligence Division of Public Health Wales.
CARIS aims to provide reliable data on congenital anomalies in Wales which can be used to assess patterns of anomalies, including possible clusters and their causes and to inform the work of health services, including antenatal screening.
The CARIS Annual Report 2019 (Welsh language version) includes the prevalence rates of key congenital anomalies and rare diseases in Wales, with a focus on hips. The updated prevalence rates includes the Official Statistics release of 2018 data. Additional information about the annual report and data tables can be found here.