8th January, 9.30am – 2.30pm

The annual Welsh Patient Day for patients and families affected by rare inherited eye disease is taking place at the School of Optometry & Vision Sciences, Maindy Road, Cardiff.


The programme for the day can be found here

This is a new initiative designed to bring people with inherited eye disease, especially those located in South Wales, together. The meeting will be interactive and there will also be stalls with information from charities and patient groups. The aim of the meeting is to provide more information about support that is available and to bring together patients, ​families, charities in the sector and health professionals.

Lunch and tea will be provided free ​of charge ​and there will be plenty of time to talk to others during the meeting and network. It is hoped that many people with a broad a range of experiences of inherited eye disease will attend. The day will also include a Patient Panel Q & A session which will be chaired by the Director of Genetic Alliance UK, Alastair Kent. Please get in touch with our Welsh Development Officer Emma (emma@geneticalliance.org.uk) if you would like to share your experience of living with rare inherited eye disease as part of the panel.

Further information can be found in the conference flyer

Please email Su Jenkins: JenkinsS33@cardiff.ac.uk if you would like to attend specifying whether you have any dietary requirements.