Are you or your family member affected by or at risk of a genetic condition?
Want to improve the quality of genetic counselling services and how they communicate with patients?
At Cardiff University, we are seeking the views of people from families affected by genetic condition, but who have NOT (yet) had genetic counselling themselves, to try and understand what people may expect from the service.
We are asking the question: ‘What do members of families affected by genetic conditions think genetic counselling is?’ Finding an answer will help the service to understand what patients expect, and develop effective ways to communicate with patients and families.
Taking part will involve an interview that can be done in person, by telephone or via Skype, whichever is most convenient for you.
If you are interested in participating, please contact Marion McAllister on firstname.lastname@example.org or 029 2251 0811 who can send you a Participant Information Sheet and Consent Form.