Thursday 18th October 2018, 10:00 – 14:45

Holiday Inn Hotel, Cardiff, CF10 1XD

Join us for our fourth annual Rare Disease Patient Network meeting, which will bring together patients, families, health professionals and researchers with an interest in rare diseases. Attendees will receive updates about the latest developments in rare diseases and genomics and will also hear patient perspectives of living with rare, genetic conditions. Professor Fiona Verity from Swansea University will be hosting a workshop about social care research in order to improve opportunities for patients and families to undertake research in this area. There will also be time for discussion and questions with our experts and opportunities for networking. The full agenda will be circulated in due course.

Lunch and refreshments provided

This event is FREE but you must register to attend via Eventbrite please register as soon as possible as places are limited. You are invited to share the opportunity with your networks.

Patient groups are invited to have a stand at the event which will be allocated on a first-come, first-served basis. Please contact to book your place.

For more information, please contact Wales Gene Park’s Policy & Engagement Manager in Wales, Emma Hughes –