30 January, 10:30 – 14:00, Main Building, University Hospital of Wales, Heath Park, Cardiff CF14 4xw 

Rare Resources: Design the Toolkit

Calling families in Wales! Received a diagnosis of a rare, genetic or undiagnosed condition? We need your experience to help us design an information toolkit for other families in Wales. 

Genetic Alliance UK, the charity that runs the Rare Disease UK campaign, are searching for families affected by rare, genetic or undiagnosed conditions to join a focus group on 30 January in Cardiff. At the focus group you will have the opportunity to share your experience to help design information resources for families across Wales. Email to register your interest here