To mark Rare Disease Day 2019, which will take place on February 28th, Rare Disease UK launched its campaign to Illuminate the #RareReality. At the recent Rare Disease UK Welsh Senedd Reception Amy Griffiths, SWAN UK representative for south Wales, and Dr Jayne Spink, CEO Genetic Alliance UK, and helped get the #RareReality campaign underway.




You can help illuminate the reality of living with a rare condition by adding your star and shine a light on your own rare reality.  Please follow the link to add your message here