Genetic Alliance UK welcomes the publication of the UK’s Rare Diseases Framework and looks forward to working with the four nations of the UK to help deliver its aims.
This is once again an almost unique piece of health policy in that it represents a commitment from the UK’s four health ministers to deliver a shared aim for people living with rare conditions.
You can read Genetic Alliance UK’s thoughts on the new framework here.
Genetic Alliance UK is also delighted to have Lord Bethall of Romford’s commentary on the framework on their website.
If you would like to learn more about Welsh plans for the Framework’s implementation, please join the next Cross Party Group on Rare, Genetic & Undiagnosed Conditions taking place on Monday 18 January, 14.30 – 16.00 via Zoom. Please email Emma: email@example.com for joining instructions to attend.