When: Wednesday 24 February, 10.00 – 12.00 via Zoom
Sign up here: http://eepurl.com/ho7qA5
Plans for this year’s Rare Disease Day activities are well underway albeit a little different to usual.
This year the annual event will be a joint parliamentary event with the other nations of the UK and will focus on the implementation of the new UK Rare Diseases Framework that was published last month.
Speakers will include Health Ministers and policy makers from across the UK, parliamentarians and patients and carers affected by rare and genetic conditions. You can join for the whole event or specifically for the Welsh section which will take place from 11.00 – 11.30am.
Please share the invitation with others who may have an interest in attending.
If you would like to be notified about our activities for Rare Disease Day and receive regular newsletters, you can join Rare Disease UK as a supporter
You can also follow us on Twitter, Facebook or Instagram:
Twitter: @rarediseaseuk
Instagram: @rarediseaseuk
Facebook: https://www.facebook.com/RareDiseaseUK/
For more information, you can also contact the Genetic Alliance UK Policy & Engagement Manager (Wales), Emma Hughes – emma@geneticalliance.org.uk.
