Please join us for our annual meeting – free to attend for anyone with an interest in rare diseases!
This year, we will hear about opportunities to get involved in Rare Disease Day 2023, plans underway for developing a patient passport service for rare diseases, hear updates about the Welsh Rare Disease Plan and Syndromes Without a Name (SWAN) clinics in Wales. Join the workshop to input to the development of a funding bid for a digital hub to support rare disease patients in Wales!

This event is FREE to join via Zoom.

Register via Eventbrite to receive the joining link and instructions:

For more information, please contact Emma Hughes: