Posts By: Wales Gene Park

UK’s Rare Diseases Framework published

Genetic Alliance UK welcomes the publication of the UK’s Rare Diseases Framework and looks forward to working with the four nations of the UK to help deliver its aims. This is once again an almost unique piece of health policy in that it represents a commitment from the UK’s four health ministers to deliver a… Read more »

Virtual Public Genomics Café: 14th January 2012, 11am-12.45pm

Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. The first café of 2021 will provide the… Read more »

Virtual Rare Disease Patient Network meeting: 10th December 2020, 10am-2.30pm

Join Wales Gene Park for its sixth annual Rare Disease Patient Network meeting – this year’s event will take place exclusively online via Zoom.  We look forward to welcoming you to our 6th annual meeting, bringing members of the Rare Disease Patient Network* together. Genetic Alliance UK will be launching it’s Quinquennial Patient Experience Report,… Read more »

Virtual Public Talk: 7pm, Thursday 12th Nov 2020

“We came, we saw, we took samples back to Earth!” Join us for a FREE virtual public talk from John Holt, Space Research Centre, University of Leicester. Talk synopsis: NASA have been talking about Mars Sample Return (MSR) since the 70’s, but now it is happening for real! The Perseverance rover is the first stage… Read more »

COVID-19 update from Wales Gene Park: December 2020

As lockdown restrictions eased in Wales over the summer, we were pleased to re-open our laboratories and resume practical work. Both the Genomic Sequencing lab, based in the Division of Cancer and Genetics, School of Medicine, and the Genome Editing lab, based in the School of Biosciences, in Cardiff University are open for business. Things… Read more »

Virtual Public Genomics Café: Nov 19th, 11am

Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. November’s café will feature relaxed talks from guest… Read more »