Virtual Schools’ Genetics & Genomics Roadshow Autumn 2021/Spring 2022 – book now!


Now in its 12th year, Wales Gene Park’s Schools’ Genetics & Genomics Roadshow has gone virtual for the first time!

 What is the Roadshow?

  • The Roadshow offers free talks to your school or college’s year 12 & 13 biology/science students
  • During the live roadshow sessions expert speakers (usually two per event) will speak on topics related to DNA, genetics & genomics, presenting cutting-edge advances in these areas and discussing careers. Each talk is around 20 minutes with time for questions – the roadshow lasts up to an hour (we will try our best to tailor events to any specific needs/timings you may have)
  • If you have any particular subjects you would like to hear about, please let us know. We will try and provide talks on preferred topics, however choices cannot be guaranteed as they will depend on speaker availability
  • Events will take place in autumn term 2021 and spring term 2022

How can I take part?

To register your interest in having a roadshow & receive a booking form email walesgenepark@cardiff.ac.uk

 

Save the Date: 30th June, 12pm-1.20pm, Virtual Parliamentary Briefing on Rare, Genetic & Undiagnosed Conditions


Sponsored by Mark Isherwood MS

Join Genetic Alliance UK and supporters to learn more about the work of the Cross Party Group on Rare, Genetic & Undiagnosed Conditions and how the new UK Framework for Rare Diseases aims to improve the lives of those affected by rare conditions.

Speakers will include patients and families affected by rare conditions and clinicians sharing their perspective on how the Framework can make an impact in Wales. The session will cover:

  • diagnosis of rare conditions and how genomics is transforming healthcare
  • education of health professionals and coordination of care
  • access to specialist care, treatment and drugs

Please email Emma Hughes: emma@geneticalliance.org.uk to express an interest in attending the briefing session and to receive joining instructions.

 

Briff Seneddol Rhithwir ar Amodau Prin, Genetig a Heb Ddiagnosis

Nodwch y Dyddiad! Dydd Mercher 30 Mehefin, 12pm – 1.20pm 

Noddir gan Mark Isherwood MS

Ymunwch â Genetic Alliance UK a chefnogwyr i ddysgu mwy am waith y Grŵp Trawsbleidiol ar Gyflyrau Prin, Genetig a Heb Ddiagnosis a sut mae Fframwaith newydd y DU ar gyfer Clefydau Prin yn anelu at wella bywydau etholwyr y mae’r cyflyrau hyn yn effeithio arnynt.

Bydd y siaradwyr yn cynnwys clinigwyr a chleifion a theuluoedd y mae cyflyrau prin yn effeithio arnynt yn rhannu eu persbectif ar sut y gall y Fframwaith gael effaith yng Nghymru. Bydd y sesiwn yn ymdrin â:

  • diagnosis o gyflyrau prin a sut mae genomeg yn trawsnewid gofal iechyd
  • gweithwyr proffesiynol iechyd a chydlynu gofal
  • i ofal arbenigol, triniaeth a chyffuriau.

Ebostiwch Emma Hughes: emma@geneticalliance.org.uk i fynegi diddordeb mewn mynychu’r sesiwn friffio a derbyn cyfarwyddiadau ymuno.

Virtual Public Genomics Café 15th June: haematology – hereditary anaemias & iron overload


Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. This specialist café – organised with Friends of Cymru Sickle Cell & Thalassaemiawill focus on haematology; specifically hereditary anaemias and iron overload. It will feature relaxed talks including:

  • Funding and expansion of the service in Wales for Hereditary Anaemias: Dr Sian Lewis
  • The Clinical Nurse Specialist role & services provided for hereditary anaemias and iron overload: Annette Blackmore
  • Blood Transfusion for Hereditary Anaemias (the need, problems encountered and developments): Dr Keith Wilson
  • Introduction to Friends of Cymru Sickle Cell & Thalassaemia: Faith Walker

The Haematology Café will be an informal opportunity to meet others, hear talks from experts and ask questions. It will also be a chance for people to come together and be supported by others in their communities.  The café is FREE, but you will need to register via Eventbrite to receive the Zoom joining link and instructions.

Register for Haematology Café: https://rb.gy/7w4j8j

For further information email walesgenepark@cardiff.ac.uk

Genomics Showcase 14th May 2021 – register now!


What is the Genomics Showcase?

Wales Gene Park is organising a new and exciting Genomics Showcase in collaboration with Genomics Partnership Wales.  The Showcase was due to take place in Cardiff City Hall, however, the pandemic has forced a move to a virtual platform for delivery, so now you can join in from the comfort of your own home!

The event will showcase genomics and its potential to improve healthcare for the people of Wales. The event will be live from 10.00am until 7.00pm.  You can join and leave as many times as you like during the day or stay logged-on for the duration!

Content will include:

Main Foyer

This will be an arrival area for all participants.  There will be notice boards and signs to the various elements on offer.  To assist participants to gain the most from the event, there will also be an interactive Information Zone with latest info about proceedings and ‘what’s coming up’ notices.  Enquiries about various aspects of the event will be dealt with at a Help Desk.

Public Zone

  • A series of talks throughout the day
  • A Genomics Café
  • A Twilight Discussion
  • An exhibition area with stands from various patient groups, charities etc
  • A ‘Short Clips’ area – short films/animations on various genetics/genomics topics shown throughout the day
  • Talks from key stakeholders and various other organisations

Interactive Zone

  • An interactive games room with quizzes, puzzles and more
  • Genomics Treasure Hunt
  • DNA Extraction

School Zone

This will be accessible to all but focussed towards students

  • University stands
  • Genomics careers information

Health Professionals & Researchers Zone

The zone will include:

  • Four/five simultaneous events consisting of presentations and talks
  • A Poster Hall where academic posters will be displayed and can be visited at any time.  There will also be the opportunity for the best posters to be presented as talks.
  • An Exhibition Area where companies will have virtual stands, accessible all day

There is something for everyone at this event, so please pass the information on to family, friends & colleagues!

Register for the Genomics Showcase here

If you would like any further information, please contact walesgenepark@cardiff.ac.uk