Virtual Rare Disease Patient Network meeting: 10th December 2020, 10am-2.30pm


Join Wales Gene Park for its sixth annual Rare Disease Patient Network meeting – this year’s event will take place exclusively online via Zoom. 

We look forward to welcoming you to our 6th annual meeting, bringing members of the Rare Disease Patient Network* together.

Genetic Alliance UK will be launching it’s Quinquennial Patient Experience Report, bringing together the experiences of over 1000 members of our community affected by rare and genetic conditions.

Other invited speakers will discuss how genomics is changing healthcare and share experiences of living with a rare disease during COVID 19.

We will also be joined by Phenotypica and Dr Samuel Chawner who will be hosting an online workshop focused on highlighting the experiences of individuals with genetic conditions through creative engagement.

This virtual event is FREE for anyone within the rare disease community; patients, families, researchers, health professionals and we welcome non-network members to come along to find out more.

Book via Eventbrite: https://tinyurl.com/yyeuz7f3 

Once registered, Zoom details for joining the event will be emailed out to all attendees prior to 10 December along with the full programme. There will also be a lunch break after the morning presentations and ahead of the workshop in the afternoon.

If you have any questions about the event, please contact, Emma Hughes: emma@geneticalliance.org.uk

*Please note you do not have to be a member of the network to attend this event, but you are very welcome to join.

Virtual Public Talk: 7pm, Thursday 12th Nov 2020


We came, we saw, we took samples back to Earth!

Join us for a FREE virtual public talk from John Holt, Space Research Centre, University of Leicester.

Talk synopsis:

NASA have been talking about Mars Sample Return (MSR) since the 70’s, but now it is happening for real!

The Perseverance rover is the first stage in MSR and it’s on the way right now; hopefully landing on the 18th Feb 2021. But, Mars may once have supported life and potentially still does, so bringing extra-terrestrial samples back to Earth presents a contamination challenge.

At the University of Leicester, we have been addressing the issues of safe containment by adopting different technologies from sectors like genetics, bio-tech and medicine. Our solution is called the Double Walled Isolator (DWI) and in this session I will talk about what is new, the science behind safe handling of a potential pathogen and how such technology might be spun back to industry.

This public talk is part of Cardiff University School of Medicine’s Science in Health Public Lecture Series 2020-2021. Other talks include Mental Health and the COVID-19 pandemic and Social justice, health equity and COVID-19. The full programme of lectures can be found here.

 

The highly successful series is now in its eighteenth year and attracts a diverse audience of interested individuals including the public, secondary school pupils and professionals. The lectures are FREE to access. This year the lectures will take place live via Zoom.

Book a place for John Holt’s talk here

COVID-19 update from Wales Gene Park: October 2020


As lockdown restrictions eased in Wales over the summer, we were pleased to re-open our laboratories and resume practical work. Both the Genomic Sequencing lab, based in the Division of Cancer and Genetics, School of Medicine, and the Genome Editing lab, based in the School of Biosciences, in Cardiff University are open for business. Things are not quite as they were pre-lockdown, with staff having to work in “bubbles” and shift patterns implemented to keep operations going as best as possible while keeping staff safe.

Two new members of staff started work during the lockdown period. Loys Richards has taken up the role of Research Coordinator and Sam Hill joined the Bioinformatics team. Although the lab teams are back on site, others are continuing to work remotely in accordance with Welsh Government advice. As such, the Bioinformatics and Education and Engagement teams continue to undertake their roles from home.

All face-to-face Education and Engagement activities have been cancelled until the end of the year, but the team continues to deliver events through virtual platforms. Please check our website for notice of upcoming events. Additionally, you can follow us on Twitter for information and updates.

If you have any enquiries about Wales Gene Park activities, please email walesgenepark@cardiff.ac.uk

Regular updates on the research situation in Wales are available via our funders Health and Care Research Wales

Wales Gene Park continues to work hard to enable and promote genetic and genomic research in Wales. Our doors are always open to you.

All the best,

Andrew Fry, Karen Reed and Angela Burgess

Director and Co-Directors, Wales Gene Park

 

 

 

 

Best wishes, Andrew Fry (Director), Karen Reed & Angela Burgess (Co-Directors)

 

 

 

Virtual Genetics & Genomics for the 3rd Generation (3G) conference: 26 Nov, 10.15am-2.30pm


Join us via Zoom for a public event about DNA, genetics & genomics

Like to find out more about the fascinating field of DNA, genetics and genomics and discover how it affects our everyday lives? Join us for the 5th annual Wales Gene Park 3G conference, which this year will be virtual for the first time! Hear expert talks on topics including:

  • An Introduction to Genomics and Rapid Genome Sequencing for sick Children
  • Dr Edward Jenner and the Story of Smallpox
  • Ethical Dilemmas in Clinical Genetics & Genomics
  • The Yellow Card Scheme for Medicines in Wales

And more……

Join us all day or drop in for some talks (talks are 25 mins. with time for questions with our expert speakers) – there will be a short break between each talk. The event is aimed at members of the public over 50, but everyone is welcome.

Attendance FREE. Registration required via Eventbrite: https://tinyurl.com/y2h8qzgh

Further information email walesgenepark@cardiff.ac.uk

 

Virtual Public Genomics Café: Nov 19th, 11am


Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. November’s café will feature relaxed talks from guest speakers on:

  • An Introduction to Genomics & Health
  • Surviving Shielding During Covid: experiences from the Rare Disease Community
  • An overview of the Cross-Party Group for Rare, Genetic & Undiagnosed Conditions
  • The National Genomics Estates Strategy in Wales for Genomics Partnership Wales & the Precision Medicine Initiative

The Virtual Café will be a relaxed, informal opportunity to meet others and find out about new advances in the area of genomic medicine in Wales. It will also be a chance for people to come together, be supported by others in their communities and let us know how we can better support those affected by rare or genetic conditions.  The café is FREE to join via Zoom, but you will need to register via Eventbrite to receive the joining link and instructions (you will also need to set up a free Zoom account).

 Register for Virtual Cafe: https://tinyurl.com/y3bx464c

Don’t forget to bring your cuppa and a snack to enjoy during the café!

Further information: email walesgenepark@cardiff.ac.uk

 

Young People’s Virtual Public Genomics Café Thursday 29 Oct 2020, 6pm – 7.30pm


Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Join us for our first ever Virtual Genomics Café specifically for young people! This event is aimed at those in the 16 to 25 age group and is being run by Wales Gene Park with Genomics Partnership Wales.  At October’s café, hear talks from guest speakers on:

  • An introduction to genomics and health
  • Experiences of living with a genetic condition
  • How you can become more involved in genomics in Wales

The Virtual Café will be a relaxed opportunity to find out about new advances in genomic medicine in Wales and a chance for young people to meet, come together, and let us know how we can better support those affected by rare or genetic conditions.

The cafe is FREE to join via Zoom, but you will need to register via Eventbrite to receive the joining link and instructions (you will also need to set up a free Zoom account).

Register for Virtual Cafe: https://tinyurl.com/y73qgntx

Don’t forget to bring your cuppa and a snack to enjoy during the cafe!

Further information email walesgenepark@cardiff.ac.uk  

 

 

Wales Gene Park Annual Report 2019 – 2020


The Wales Gene Park Annual Report 2019 – 2020 is now available here

The report shows how Wales Gene Park has evolved and adapted to make the very most in Wales of the opportunities presented by genomics. A major part of what the Wales Gene Park does is to make genomic technologies available to biomedical researchers in Wales. We also create a seamless interface with the NHS, accelerating the appropriate development of new services in genomic medicine for patients. We involve patients and the public in the planning and execution of research and in service and policy development through an extensive programme of engagement. We promote understanding of the opportunities and challenges raised by genomics among health professionals, schools and colleges and the public through a wide portfolio of education activities. We are receptive to ideas, questions and comments. To get in touch please email: walesgenepark@Cardiff.ac.uk

Mae’r fersiwn Gymraeg yr adroddiad blynyddol ar gael yma/The Welsh version of the annual report can be found here

 

 

Virtual public talk on Rare Cancers: 30th September 6.30 – 7.45pm


Around 1 in 5 people (20%) in the UK who have been diagnosed with cancer are thought to have a rare cancer. To mark Rare Cancer Day on 1st October, join Wales Gene Park and the Wales Cancer Research Centre to find out more about rare cancers, with short talks from expert speakers including clinicians, researchers and those affected by rare cancer. There will also be time for discussion and questions with our speakers.

This event is FREE to join via Zoom. Register via Eventbrite to receive the joining link and instructions:  https://tinyurl.com/yy9uotul

Further information: walesgenepark@cardiff.ac.uk

 

 

Virtual Public Genomics Cafe 17th Sept 2020, 11am – 12.45pm


Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales.

September’s café will feature talks from guest speakers on new and innovative projects and initiatives from the All Wales Medical Genomics Service, including hearing about setting up the COVID Dragon’s Heart Field Hospital, the introduction of video consultations for service-users during the pandemic, and the new Wales Infants and Children’s Genome Service (Wings).

The Virtual Café will be a relaxed, informal opportunity to meet others and find out about new advances in the area of genomic medicine in Wales. It will also be a chance for people to come together, be supported by others in their communities and let us know how we can better support those affected by rare or genetic conditions.  The cafe is FREE to join via Zoom, but you will need to register via Eventbrite to receive the joining link and instructions (you will also need to set up a free Zoom account).

Register for Virtual Cafe: https://tinyurl.com/y666tp8w

Don’t forget to bring your cuppa and a snack to enjoy during the cafe!

Further information: email walesgenepark@cardiff.ac.uk