Sign up to our Public Genetics Network!

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Public Genetics Network newsletter (edition 1, autumn 2016)

Launched in June 2016, our public genetics network allows members of the public to keep up to date with all the latest information from Wales Gene Park. Free to join and open to anyone with an interest in genetics, members received a biannual (spring and autumn) e-newsletter highlighting Wales Gene Park events (including our public talks, community-group talks, and 3G public genetics conference), genetics-related news, and opportunities to to take part in other relevant activities such as providing opinion on policy consultations, or participating in research projects.

To sign up to the Public Genetics Network please contact (details of anyone joining the network will not be shared with any third parties and members will only be contacted by Wales Gene Park).

Living with Genetic Conditions sessions for students and the public


Living with Genetic Conditions session with healthcare students at the University of South Wales

Living with Genetic Conditions is an educational session originally developed for schools (specifically year 12 and 13 pupils) which, due to its popularity, has been expanded and is being delivered more widely to public audiences and also students on nursing and other healthcare courses at Cardiff University, University of South Wales, and Cardiff Metropolitan University amongst others. The sessions have been received very positively by both the students and educators, evaluating extremely well; as a result we are now offering them to other universities throughout Wales.

The session begins with a talk from a genetic counsellor (or other health professional specialising in genetics) about genetics and inherited conditions. This is followed by a talk from someone affected by a genetic condition (this can be an individual with the condition, a family member, or carer). This personal narrative gives an insight into the impact a genetic condition can have on an individual or family, and provides a powerful account of how it affects them on a daily basis. Educationally it can help to link theory and practice, and highlight the relevance of genetics to healthcare. Following the talks, there is a question and answer session with the audience.

In conjunction with Genetic Alliance UK and their Rare Disease UK campaign, we will also be holding a Living with Genetic Conditions session for the public as part of a series of events in Wales to mark Rare Disease Day 2017. The session will take place in Cardiff on February 28th (further details will appear shortly), where personal accounts from a number of individuals affected by rare conditions will help to raise awareness and highlight issues faced by the rare disease community.

If you are interested in finding out more about our Living with Genetic Conditions sessions, please get in touch:

Clinical Genetics & Psychiatry – What’s New?

Friday 12th May 2017, Radisson Blu Hotel, Cardiff

Increasingly genetic alterations are being identified which confer a risk of neurodevelopmental and mental health issues. Professionals in clinical genetics and psychiatry will need to address these issues with families and consider how genetic testing, appropriate information, and counselling might be beneficial to individuals and the wider family.

This meeting is open to professionals involved in assessing, diagnosing and supporting patients and families where genetic alterations, such as CNVs, have been identified or might be implicated. In particular, this course is aimed at psychiatry and clinical genetics medical staff, trainees and counsellors.

This one-day meeting is organised by Wales Gene Park, in conjunction with Dr Annie Procter, Consultant Geneticist & Director of the Mental Health Clinical Board, Cardiff & Vale UHB and Professor Jeremy Hall, Director of the Neuroscience and Mental Health Research Institute, Cardiff University. The event will take place in Cardiff at the Radisson Blu Hotel, which is an easy 5-minute walk from Cardiff Central Station.

Registration will take place from 9.30am, with the meeting starting at 10.00am and finishing around 4.30pm.

Confirmed speakers include:

  • Professor Mike Owen, Cardiff
  • Prof Jeremy Hall, Cardiff
  • Professor Lucy Raymond, Cambridge
  • Professor Andrew McIntosh, Edinburgh
  • Dr Annie Procter, Cardiff

Topics covered include: Schizophrenia, ADHD, Mood Disorders, Intellectual Disability and Mental Health & Genetics: Challenges for Service Delivery

Programme details

Registration form

Further information available from Angela Burgess, Wales Gene Park:


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Public talk: Prostate cancer – how research is improving patient outcomes

Join us for this free public event for prostate cancer awareness month!

Thursday 23rd March 2017; talks 6.15-7.45pm (registration, coffee and stands from 5.45pm)

Hadyn Ellis building, Cardiff University, CF24 4HQ

In Wales prostate cancer is the most common cancer in men. To find out more about it, join us at this public event to hear expert talks on the latest research discoveries including some of the recent findings from clinical trials; perceptions and attitudes around prostate cancer; genetic studies. There will also be an opportunity to hear a personal account from someone affected by prostate cancer, and time for discussion and questions with the experts.

This event is FREE but you must register to attend via Eventbrite

For further information email or phone 02920 746940

Organised by Wales Gene Park and Cancer Research UK

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Engagement award for Wales Gene Park!

Wales Gene Park has been named as winner of the ‘Outstanding Contribution to Engagement’ award at Cardiff University School of Medicine’s inaugural STAR awards ceremony.

The awards, which recognise the achievement of excellence by members of staff across the School of Medicine, were presented by Jayne Dowden (Chief Operating Officer, Cardiff University) at Cardiff’s City Hall on October 18th.

Angela Burgess, Wales Gene Park’s Education and Engagement Project Manager, said “We are delighted to have received this award for the genetics engagement programme we have delivered to health professionals, schools and colleges, patients, and the general public, throughout Wales for over 13 years”.

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Pictured above with the award are (left to right) Jayne Dowden, Emma Hughes (Wales Development Officer, Genetic Alliance UK), Angela Burgess (Education and Engagement Project Manager, Wales Gene Park), Rhian Morgan (Education and Engagement Officer, Wales Gene Park) and Professor Ian Weeks (Associate Dean of Clinical Innovation, Cardiff University).

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Public genetics conference in North Wales!

Join us for the first Wales Gene Park Genetics and Genomics for the 3rd Generation (3G) public conference in North Wales! Tuesday 29th November 2016, The Racecourse Ground, Wrexham, LL11 2AH, 12.30pm – 4pm.

There will be a series of short talks on a range of interesting, genetics-related subjects throughout the day (you can join us for the whole event or drop in for any of the talks! There will be a 5 minute break between talks to drop-in or out), along with some stands for visitors to enjoy.

The event is primarily aimed at members of the public over 50, but everyone is welcome!

Attendance is FREE but you must register to attend via Eventbrite:

Lunch and refreshments provided.

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This event is supported by the Wellcome Trust Institutional Strategic Supprt Fund and Cardiff University.

Public talk: Genomic Medicine – What it is and How the 100,000 Genomes Project Can Help the NHS to Deliver it

Join Dr Tom Fowler, Genomics England’s Director of Public Health and Deputy Chief Scientist, to learn about genomic medicine and how the 100,000 Genomes project can help the NHS to deliver it. There will also be a question and answer session with the speaker.

Free Public event

Thursday 13th October 2016, 7 – 8pm

Large Chemistry Lecture Theatre (room 1.123), Cardiff University Main Building, Park Place, CF10 3AT

For further information email or phone 02920 746940


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This event is organised by Wales Gene Park and Cardiff University School of Medicine’s Public Understanding of Science in Health (PUSH) group as part of the Science in Health Public Lecture Series:

WGP Data Management Plan Workshop.

Friday 17th June 2016, 9.30am – 3pm.

Register now by emailing

Join us in Cardiff University’s Michael Griffiths lecture theatre (Heath Park Campus) to discover all you need to know about research data management.

  • Learn about data management and how to put together a successful Data Management Plan.
  • Discover the resources and support available within the University to help you succeed.
  • Learn how to manage your research data throughout the lifespan of your project and beyond.

Refreshments and lunch is included.
This event is free of charge but please register by emailing to attend.


Download workshop programme.

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To register

To register, or further enquiries, please contact Dr Kevin Ashelford at




This workshop would not be possible without the generous support, advice, and input from our colleagues:

  • Sarah Phillips – Portfolio Management and IT Services
  • Sian Collins – Strategic Planning and Governance
  • Matt Cooper – Strategic Planning & Governance
  • Lee Bartlett – Research and Innovation Services
  • Robert Andrews – School of Medicine – System Immunity URI
  • Mark Einon – School of Medicine – PsychMed
  • Peter Giles – Wales Gene Park
  • Christine Kitchen – ARCCA
  • Martyn Guest – ARCCA
  • Kevin Ashelford – Wales Gene Park

Film Screening of Gattaca for Schools: Could genetic design make me a better Play Station Player?

Thursday 30th June, 9.45am – 12.45pm, Pontio Arts and Innovation Centre, Bangor University

Gattaca presents a future in which children are genetically designed to ensure that they possess the best hereditary traits of their parents. But, what about the science behind this? To find out more, join us for a screening of the film Gattaca, followed by a presentation ‘Could genetic design make me a better PlayStation Player?’ by Dr Thomas Caspari from the School of Medical Sciences at Bangor University. Spaces will be allocated on a first come, first served basis.

This event will provide school pupils with an opportunity to attend a screening of the film Gattaca in the new Pontio Arts and Innovation Centre at Bangor University, hear a talk from a scientific expert on genetic design and put their questions to him afterwards. The event is aimed at school pupils aged 15+

For more information or to book, please email

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Gene discovery in epilepsy: the role of biobanks in patient research

Thursday 23rd June 2016; 6 – 7.30pm; MRC CLIMB seminar room (Room 117), Institute of Life Science 1, Singleton Park, Swansea University SA2 8PP

Join us to explore gene discovery in epilepsy and the role biobanks can play in patient research. Talks from experts will follow the journey from patients in the clinic, to recruitment to a research biobank, looking after the DNA samples, and making genetic discoveries. There will also be time for discussion and questions with our experts.

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This event is FREE but you must register to attend via Eventbrite:

Organised by the Wales Gene Park in association with Swansea University as part of the Wales Festival of Innovation: