Front-page News

Virtual Rare Disease Patient Network meeting: 10th December 2020, 10am-2.30pm

Join Wales Gene Park for its sixth annual Rare Disease Patient Network meeting – this year’s event will take place exclusively online via Zoom.  We look forward to welcoming you to our 6th annual meeting, bringing members of the Rare Disease Patient Network* together. Genetic Alliance UK will be launching it’s Quinquennial Patient Experience Report,… Read more »

Virtual Public Talk: 7pm, Thursday 12th Nov 2020

“We came, we saw, we took samples back to Earth!” Join us for a FREE virtual public talk from John Holt, Space Research Centre, University of Leicester. Talk synopsis: NASA have been talking about Mars Sample Return (MSR) since the 70’s, but now it is happening for real! The Perseverance rover is the first stage… Read more »

COVID-19 update from Wales Gene Park: October 2020

As lockdown restrictions eased in Wales over the summer, we were pleased to re-open our laboratories and resume practical work. Both the Genomic Sequencing lab, based in the Division of Cancer and Genetics, School of Medicine, and the Genome Editing lab, based in the School of Biosciences, in Cardiff University are open for business. Things… Read more »

Virtual Public Genomics Café: Nov 19th, 11am

Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. November’s café will feature relaxed talks from guest… Read more »

Wales Gene Park Annual Report 2019 – 2020

The Wales Gene Park Annual Report 2019 – 2020 is now available here The report shows how Wales Gene Park has evolved and adapted to make the very most in Wales of the opportunities presented by genomics. A major part of what the Wales Gene Park does is to make genomic technologies available to biomedical… Read more »

Launch of ‘Rare Reality of COVID-19’ Report & Patient Experience Survey

Launch of the ‘Rare Reality of COVID-19’ report: Today Genetic Alliance UK has launched its report on the Rare Reality of COVID-19 for patients and families affected by rare and genetic conditions. The report presents findings from the EURORDIS Rare Barometer COVID-19 Experience Survey, and from Genetic Alliance UK’s weekly community meetings during the months… Read more »

Y diweddaraf am COVID-19: Parc Geneteg Cymru

Yn unol â chyngor y llywodraeth ar COVID-19, ynghyd â’n sefydliad lletyol, Prifysgol Caerdydd, mae holl staff Parc Geneteg Cymru yn gweithio o bell ac yn ymaddasu i ffyrdd newydd o gyflawni ein rhaglen waith.  Er bod ein gwaith labordy wedi’i ohirio hyd nes y bydd hi’n ddiogel inni fynd yn ôl i’r gwaith fel… Read more »

Health and Care Research Wales funding success

Wales Gene Park is delighted to confirm it has received continued funding from Health and Care Research Wales as part of its £44 million investment in health and social care research in Wales. This funding will allow us to continue to support, promote and advance genetic and genomic research, healthcare, education and innovation in Wales…. Read more »

Congenital Anomaly Register and Information Service (CARIS) Annual Report 2019

The Congenital Anomaly Register and Information Service (CARIS) was established in 1998 as a register of congenital anomalies in Wales, and has always included some rare diseases of genetic/hereditary origin. It sits within the Health Intelligence Division of Public Health Wales. CARIS aims to provide reliable data on congenital anomalies in Wales which can be used to assess patterns of… Read more »