For Patients – News

Podcast drama Tremolo nominated for BBC Audio Drama Awards!

The podcast drama Tremolo – a collaboration between Wales Gene Park, Illumine Theatre and Theatr Genedlaethol Cymru, supported by the Genetics Society – has been nominated for two BBC Audio Drama Awards! The awards celebrate the range, originality and cut-through quality of audio drama on air and online and give recognition to the creativity of actors,… Read more »

Wales Gene Park Update December 2022

As 2022 draws to a close, it is a pleasure to share with you a few highlights from Wales Gene Park, demonstrating the breadth of our activities and inviting you to contribute to future highlights.

Genomics Delivery Plan for Wales 2022 – 2025 Launched

Genomics is amongst the most exciting arenas of 21st century healthcare and will give us previously unimaginable opportunities to better understand illness, improve patient outcomes and transform lives. Personalised medicine, testing and other genetic adaptations and innovations using new methods, tools and technologies will shape the future of modern medicine. The Genomics Delivery Plan for… Read more »

Wales Gene Park Annual Report 2021-22

The Wales Gene Park Annual Report 2021 – 2022 is now available here. Welsh version of Wales Gene Park Annual Report 2021 – 22 can be found here

Wales Rare Diseases Action Plan 2022 – 2026 Launched

The families of people with rare diseases may have to undertake a long journey to find a to find a diagnosis (often called a diagnostic odyssey); there may be ignorance of their condition and as a result their care may be uncoordinated and individuals might not have access to the best treatment options. The Wales Rare Diseases… Read more »

Genetic Alliance UK Launches Good Diagnosis Report

To coincide with Rare Disease Day 2022, Genetic Alliance UK has launched a new report, ‘Good Diagnosis: Improving the experiences of diagnosis for people living with rare conditions’. Read the full report here. PRINCIPLES OF GOOD DIAGNOSIS The experience of diagnosis is, at its essence, a very personal and individual experience. There is no one… Read more »