News For Researchers

Virtual Rare Disease Patient Network meeting: 10th December 2020, 10am-2.30pm

Join Wales Gene Park for its sixth annual Rare Disease Patient Network meeting – this year’s event will take place exclusively online via Zoom.  We look forward to welcoming you to our 6th annual meeting, bringing members of the Rare Disease Patient Network* together. Genetic Alliance UK will be launching it’s Quinquennial Patient Experience Report,… Read more »