Find out from Louise Fish, Chief Executive Genetic Alliance UK, how you can raise awareness and help highlight rare diseases in February 2023.
Get Involved in Rare Disease Day 2023!
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Public Lecture 17 November, 6.45pm, Cardiff University – Let’s talk cultured meat: reflections on the socio-politics of growing meat in vats
Annual Public Genetics & Genomics (3G) Conference Thurs 1 Dec, 10.15am – 2pm, Zoom. Book now!
Like to find out more about the fascinating field of DNA, genetics and genomics and discover how it affects our everyday lives? Join us for our 7th annual 3G public genetics and genomics conference! Enjoy short talks on topics including: Getting the Timing Right: Chrononutrition Exploring early human populations in Britain using ancient DNA The… Read more »
Public Genomics Café, 24th Nov, 11am-12.45pm, Zoom. Book now!
November’s café will feature relaxed talks including: Co-occurring conditions in autism – the who and the why Dr Jack Underwood, Clinical Research Fellow, Cardiff University Genomic Data-Sharing for Research Rhys Vaughan, Genomics Consent Manager, Wales Gene Park Introduction to Pharmacogenomic Testing in Wales: How Genetics can Help Treatment Choices Aine Moylett, All Wales Medical Genomics… Read more »
Welsh Rare Disease Patient Network Annual Meeting 2022, 10th Nov 10.30am – 2.30pm, Zoom. Book now!
Please join us for our annual meeting – free to attend for anyone with an interest in rare diseases! This year, we will hear about opportunities to get involved in Rare Disease Day 2023, plans underway for developing a patient passport service for rare diseases, hear updates about the Welsh Rare Disease Plan and Syndromes… Read more »
Young People’s Genomics Café: 20th Oct, 6 – 7.30pm, Zoom – book now!
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Join us! These events are aimed at those aged 16 to 25. October’s café will feature relaxed talks including: Chromosomes! Dr Andrew Fry, Clinical Senior Lecturer in Medical Genetics, Cardiff University An Introduction… Read more »
Genomics After Dark @ Techniquest, 6th October 2022, 6.30 – 10pm
Genomics Partnership Wales is taking over Techniquest for one night only! Join us for an evening of fun activities that will give you an understanding of the fascinating world of genetics and genomics. Activities include: DNA Extractions Public Talks Interactive Stands Techniquest’s own hands-on exhibits Star-Tours in the planetarium Fully Licensed Bar Full event details… Read more »
‘Unique You’ Workshop: developing cancer resources for the public 15th Sept, 3.15- 4.45pm
Are you a member of the cancer community? Do you feel the science of cancer could be better explained? Could you provide feedback on our new resources? Then get involved in our Unique You project ! Cancer researchers at Cardiff University need your help to test tools to be used with the cancer community at public events…. Read more »
Public Genomics Café, 29 Sept, 11am – 12.45pm, via Zoom – book now!
September’s café will feature relaxed talks including: Genetics & Exercise – Can Your IL-6R Gene Influence Your Exercise Choices? Dr Richard Webb, School of Health Sciences, Cardiff Metropolitan University A Personal Experience of a Rare Condition Rare Disease Advocate Supporting those with Undiagnosed Conditions in Wales: the new SWAN Clinics Initiative Dr Ian Tully, All… Read more »
Public Genomics Café: Tue 5th July 2022, 11am-12.45pm, Zoom – book now!
July’s café will feature relaxed talks including: Enabling Diagnosis through Genomic Research Dr Karen Reed, Wales Gene Park A Family’s Experience of the Rare Condition Neurofibromatosis type 1 (NF-1) Clare Giles, Rare Disease Advocate The Impact of Rare Disease Through a Lens Ceridwen Hughes, Same But Different A Personal Account of Thalassaemia Kyriacos Kanias, Rare Disease Advocate All… Read more »
