Genomics Partnership Wales are now accepting applications to join their Patient and Public Sounding Board. This is an exciting opportunity for a range of individuals to join the conversation on the future of genomics in Wales. GPW are committed to working with patients and members of the public, to explain things in a clear and… Read more »
Education and Engagement Officer: apply here Closing date: 14 May 2023
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Join us! These events are aimed at those aged 16 to 25. May’s café will feature relaxed talks including: From Silence to Sound: Finding My Voice as a Rare Disease Patient Melissa Martin,… Read more »
Wales Gene Park is delighted to announce that ‘Tremolo’ actor Gareth Elis (pictured below) won the Marc Beeby Award for Best Debut Performance at the recent BBC Audio Drama Awards 2023! ‘Tremolo’ by Lisa Parry, a collaboration between Wales Gene Park, Illumine Theatre and Theatr Genedlaethol Cymru, supported by the Genetics Society, is a thought-provoking, bilingual podcast… Read more »
April’s café will feature relaxed talks including: Translating advanced genomic research techniques into the clinic for patient benefit Dr Hywel Williams, Cardiff University The Unique Network: Supporting and informing families and professionals affected by rare chromosome and gene disorders Sarah Wynn, Unique About “Care & Respond” and the Health Passport James Ingram, Scienap The Plan… Read more »
Can genetic testing help make medicines safer? Professor Dyfrig Hughes, Bangor University Large Lecture Theatre, Level 5, Pontio, Bangor University, Deiniol Road, Bangor LL57 2TQ Monday 6th March 2023, 7 – 8pm (registration from 6.30pm, talk starts 7pm). Medicines have transformed the lives of many. However, there is always a chance that people experience a side… Read more »
Project Officer: details here Closes Friday 3rd March 2023
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Join us! These events are aimed at those aged 16 to 25. March’s café will feature relaxed talks including: Co-occurring conditions in autism – the who and the why Dr Jack Underwood, Cardiff… Read more »
Want to find out more about genomics & health in Wales? Affected by a rare, genetic or undiagnosed condition? Join us! February’s café will feature relaxed talks including: SWAN UK – Cymru: Update & Introduction to the new ‘Rare Resources Wales’ Izzy Rundle, SWAN UK All Wales Psychiatric Genomics Service: An update Dr Annie Procter,… Read more »
Find out from Louise Fish, Chief Executive Genetic Alliance UK, how you can raise awareness and help highlight rare diseases in February 2023.
