Uncategorized

Virtual Public Genomics Café: Nov 19th, 11am

Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. November’s café will feature relaxed talks from guest… Read more »

Virtual Public Genomics Cafe 17th Sept 2020, 11am – 12.45pm

Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. September’s café will feature talks from guest speakers… Read more »

Virtual Public Genomics Cafe: 30th July 11am – 12.45pm

Are you affected by a rare or genetic condition? Are you a member of the public interested in finding out more about genomics and health? Join us for a Virtual Genomics Café! This initiative is being run by Wales Gene Park in collaboration with Genomics Partnership Wales. Following the success of June’s COVID-19 café, this… Read more »

Launch of ‘Rare Reality of COVID-19’ Report & Patient Experience Survey

Launch of the ‘Rare Reality of COVID-19’ report: Today Genetic Alliance UK has launched its report on the Rare Reality of COVID-19 for patients and families affected by rare and genetic conditions. The report presents findings from the EURORDIS Rare Barometer COVID-19 Experience Survey, and from Genetic Alliance UK’s weekly community meetings during the months… Read more »