Mae fideos byr am rôl a phwysigrwydd ymchwil i glefydau prin wedi cael eu creu gyda rhai o’n partneriaid, gan gynnwys cleifion a gofalwyr, ymchwilwyr a gweithwyr iechyd proffesiynol. Mynnwch gipolwg ar pam maen nhw’n meddwl bod cynnwys cleifion a’r cyhoedd mewn ymchwil yn bwysig:
Marie: Why does research matter?
Marie: What’s the best thing about being involved in research as a member of the public?
Marie: Supporting members of the public to take part in research
Marie: Would you recommend taking part in research?
Marie: Encouraging patients and the public to take part in research
Marie: Barriers to taking part in research
Alan: What sort of research have you been involved with?
Alan: The importance of research into rare diseases
Alan: Encouraging patients and families to get involved in research
Alan: What would you like to see happening in rare disease research?
Professor Andy Tee:
Andy: The importance of carrying out research with patients and the public
Andy: Listening to what families and patients are asking for
Andy: Supporting researchers to involve patients and the public in research