Nephrology

Posted 1 year ago by Wales Gene Park

Would you like to know more about your kidney disease? Would you consider joining a national database? The National Registry of Rare Kidney Diseases (RaDaR) is a research initiative by UK kidney specialists (the Renal Association and the UK Renal Registry). It is designed to gather information from patients with rare kidney diseases. This will give a much better understanding of how these illnesses affect people. It will also speed up research. How does it work? Information about your treatment and any medications you are on will be entered into the RaDaR database by a member of your hospital’s research team. You will be given login details to see your information online via a website called Patient View (www.PatientView.org), if your hospital is signed up to this. Doctors and other researchers who are interested in your specific condition are working together as part of a Rare Disease Group (RDG). They have access to...

 Nephrology /  Wales Wide


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