Exercise behaviours in children and young people with cystic fibrosis

 Cystic Fibrosis / Posted 11 months ago

Exercise has been found to help children and young people with cystic fibrosis (CF) but many people find it difficult to keep going. This research is finding out what children and young people with cystic fibrosis think and feel about exercise, and how much exercise they are doing. Then the researchers want to make a tool (a way of measuring something, like a questionnaire) that may help identify how to optimise and maintain healthy activity levels for individual children and young people with CF in the future.

  • Inclusion Criteria :
    • Part A:CYP participating in Project Fizzyo, and thus aged 6-16 years, diagnosed with CF, under the care of a participating London CF centre, and use a suitable airway clearance device for Project Fizzyo
    • Part B:Confirmed diagnosis of CF, age 8-16 years, able to understand spoken and written English
  • Exclusion Criteria :
    • Part A:CYP unable to read, understand or complete questionnaires in written English
    • Part B:Having received or on a waiting list for lung transplant, physical activity or exercise ability affected by a condition other than CF
  • Study start date : 03/12/2018
  • Study end date : 31/01/2021
  • Wales-Based Study Contact : please speak to your clinician
  • Principal Investigator : Ms Helen Douglas
Contact details

UCL Great Ormond Street Institute of Child Health Guilford Street LondonLondon,England,WC1N 1EH  Show Phone Number h.douglas@ucl.ac.uk www.sshs.exeter.ac.uk

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