United Kingdom Thrombotic Thrombocytopenic Purpura Registry
Immune thrombocytopenia / Posted 4 years ago
A prospective study of Thrombotic Thrombocytopenic Purpura in the UK
This is a UK based registry, involving all sites treating newly presenting Thrombotic Thrombocytopenic Purpura (TTP). From this registry, important epidemiological data will be obtained. Admission and remission samples will be collected. DNA will be collected and analysed from patients wishing to participate to determine if any link exists between mutations/polymorphisms and the risk of TTP.
As part of NHS commissioning, this study will be undertaking long term follow up, to understand the impact of acute TTP on morbidity and mortality.